I can't believe it ... my sister's MRI showed that about one third of her brain is covered in blood and the subdural hematoma is growing and what do the doctors in the hospital do? They discharge her and tell us to make an appointment for her to see the doctor in a couple weeks! So, we got a second opinion from a neurosurgeon recommended by a family friend and he took one look at the MRI and said "I wouldn't want this in my head" and scheduled Deb for surgery. She had the surgery two days ago and was recovering well, but now she's spiked a fever and they can't figure out what's causing that ... hopefully nothing major.
Trying to take care of my mom while running back and forth to the hospital has been an exhausting experience ... but, those of you out there who are caregivers know how this goes ... I'll get thru it somehow. I just hope my sister comes thru this stronger and better than ever and can get on with her life, as well as helping me take care of mom.
Prayers are appreciated!
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5 comments:
Hi Linda,
Wish I was not to far away to help you, Hang in there and I just know things will get better!
I do understand hating doctors and hospitals, from personal experience!
Martha
Hi Linda,
My father had the same problem. His own Dr. told him he just had a mini stroke and without any MRI he told him to get a walker and keep taking his blood thinner. Of course the blood began to build. They waited for awhile for the blood to dissipate, but finally he needed the surgery. I will say that he had good care while in ICU. But, he was 86 and was very ready, so I believe he willed himself to another place where he would be whole and happy. The nurses, who seem more realistic than the Dr's always told me that younger people usually come out of that operation as good as new. Your sister will probably be fine. I will keep you and all in my thoughts. Jill Dean
Thanks for the well wishes, Martha and Jill. This hospital stuff is truly making me crazy lately and it's always good to hear that others have been thru similar circumstances and have basically come thru it, probably even stronger than they went in. And I'm not talking about the patient ... I'm talking about the caregiver! LOL
I just read and used the info on Windows temp file cleaning and can't thank you enough for this help. Since I am also a fulltime (and only) caregiver to my 22 year old daughter who is 100% dependent, I wanted to send my best thoughts and prayers for you and your family. My daughter has been disabled since six months old from a gene mutation so I know how difficult it is to see any light at the end of such a long tunnel. What keeps me going is the knowledge that I'd rather give this care than be without my child; for someone who "supposedly" cannot communicate, she leaves no doubt that she loves me beyond belief. This is what gets me up in the morning and lets me sleep peacefully each night. I'm sure you're exhausted, weary, and probably scared most of the time, but because you have it in you to offer this care I'll bet you still feel better than if you hadn't taken on this responsibility. To say that those of us who understand that love doesn't stop when the going gets tough is just the beginning for a longtime caregiver or for any length of time if doing this alone. The most difficult thing I had to learn and accept was that after I've done everything I could to keep my child safe, happy and as healthy as I could there was but one thing left for me to do. That was to let go and let God! Meaning to let go of my fear of losing her and embrace my time with her no matter what each day brings. I hope your days get more blessed as time goes on.
Hey Linda,
Hope things get better for you. Gell well to your sister. I wish I could help you.
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